Living With Sickle Cell In Nigeria (Part 1)

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Published on May 25, 2016 by

Before getting married,every couple is advised to get tested to know their blood group and genotype to prevent having sickle cell children.

“Nigeria has about 2/3 of sickle cell disease in the entire world,” says Prof Kehinde

BattaBox presenter Odunayo visits spoke to Professor Michael kehinde, a doctor who treats sickle cell patients at the Lagos University Teaching Hospital, and he gave us a breakdown of how sickle cell affects the body and how it could be prevented.

“Sickle cell is a disease of the blood common in blacks,” says Prof Kehinde

Odunayo also spoke to some people living with sickle cell who attend counselling at the clinic every week.

“People tend to look at you like a weakling,” recounts one lady

Sickle cell disorder is a group of disorders that affects hemoglobin, the molecule in red blood cells that delivers oxygen to cells throughout the body.

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10 Comments

  • BlessinganDrew 7 years ago

    my brother has sickle cell anemia. we found out at birth and he has crisis
    every month but it is worst in the winter when he has to go to the
    emergency room frequently.

    Reply
  • Titi Are 7 years ago

    I really enjoyed this vid. Although I do not have SS, I do have another
    disorder that I’ve suffered with since I was 10 years old and also the more
    aggressive treatment for it is things like bone marrow transplant and
    chemotherapy drugs as well as other biologics to help control the
    disorder. The perception that people put on others (like being a weakling
    or not as valuable, etc) is such a sad thing. Vids like this can do a lot
    to educate those who are not ill about how to be more compassionate,
    considerate and accommodating to those who need & deserve understanding.
    And for those who are ill, it provides hope and a sense of community that
    goes such a long way by providing useful information and resources that can
    add to the quality of life and activities an ill person experiences (the
    support group was awesome). No one deserves to be mistreated or isolated
    because of a illness or physical disabilities/differences. Anticipating
    part 2…keep it up, BattaBox?

    Reply
  • ColdasIcePrincezz 7 years ago

    yes good video, thanks for bring this very bad disease to the eyes and
    hears of many people. My first husband was Nigerian and we married at 20
    years old he was my first love my first everything. So we married but he
    never told me he was sick I found out from a doctor after he had a crisis
    and I was shocked. I suffered with him for years it seems he was in the
    hospital every month, and I was loosing our babies left and right. The
    stress was to much, I prayed and prayed for him to get cured but there is
    no cure. Also their is no support for families that suffer with love one
    with this disease sadly our marriage did not last but he became a
    pharmacists after many years of trying and now lives the American Dream.
    May God be with all who suffer with this unbearable pain and I pray that
    you get the meds and help you need.

    Reply
  • Cheryl Spratlin-Davis 7 years ago

    I know that on your Nigerian driver’s license the blood group is
    listed…To my understanding it is advised that certain blood groups should
    not marry other blood groups for fear of having a baby with Sickle Cell
    Anemia…I have known several classmates and co workers that have Sickle
    Cell Anemia and they have had “flare ups” on a few occasions and are
    typically very thin physically, but otherwise they live a pretty normal
    life here in America…

    Reply
  • Brodly Benzion 7 years ago

    i feel for them/ they are beautiful people God bless them all…great
    awareness battabox

    Reply
  • kwacou 7 years ago

    My Aunt passed from sickle cell. Here in Jamaica there’s a great deal of
    research being done on on sickle cell. Great topic.

    Reply
  • Johndominic001 Dominic 7 years ago

    It is fine that this is talked about, it will as well be nice to know where
    this virus generated from. Sickle cell virus was created by the so called
    Caucasians to reduce the amount black population so that the whites out
    number the blacks. You don’t trust it check it for yourself on the web.

    Reply
  • Easy Boi 7 years ago

    Awesome video. Thumbs up (Battabox)

    Reply
  • justin dzormeku 7 years ago

    I have sickle cell and still able to run 18-20km every week and still play
    rugby aswell. If you eat the right food and take the right supplements you
    should be able to live a semi normal life.

    Reply
  • Daknocka88 7 years ago

    more topics like this. being in public health there is never enough
    emphasis on these types of diseases. More awareness should be integrated
    into Nigeria like this. I had a cousin with sickle cell that came to
    America and ended up passing away at the hospital here.

    Reply